Spasm Caught on Video

Last week at James’ neurology appointment, the doc made a couple of med changes, one of which was to take James off of one of the seizure meds this week. Tuesday was his last day of that med, but his spasms are still crazy. They happen so quickly that we…

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Read more about the article Spasms, Elmo, and Sprinklers
James and Stacy Playing in the Sprinkler

Spasms, Elmo, and Sprinklers

James had a longer neurology appointment on Tuesday. Normally the appointments are just checkups to see how things are going and possible med changes. This time the neuro wanted James to have an EEG first so he could see if there are any changes since his last EEG. The good…

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Still Having Spasms

Today Stacy started to see James have some pretty intense spasms. The way she described it is that he would have a full spasm, which was followed by several twitches and some loud cries. She’s not sure if the cries were because he was in pain, or if he’s scared.…

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Starting the Keto Diet

About a month ago we started discussing putting James on the ketogenic diet for his spasms/seizures. Over the course of the past month, we have met with doctors and a nutritionist to hash out all of the details about the diet. Today marks day 1 of this diet. We have…

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Started Taking Banzel

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Stopped Taking Sabril

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Great News About Infantile Spasms

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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