At Home VEEG

This was quite the experience. James had an at home video EEG (VEEG) over the past couple of days to record his seizure/infantile spasm activity. He is currently on 4 antiseizure meds to control his seizures and spasms which make him sleep most of the day. We’re hoping that we…

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FDA Approves ACTH

This is interesting, and a bit concerning. One of the parents in an infantile spasms support group on Facebook that Stacy is a part of posted a link to a press release about the FDA approving ACTH for infantile spasms. The press release can be found here: https://www.prnewswire.com/news-releases/fda-approves-hp-acthar-gel-for-the-treatment-of-infantile-spasms-105024204.html I think…

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Trying 2nd Dose of Sabril Again

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Neuro Eye Doctor and Next Steps

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Bad Reaction to Sabril?

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Sabril and Infantile Spasm Update

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First Dose of Sabril

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