Modeling I think I mentioned in a previous post that James has been doing some modeling. Well, he had another gig on Wednesday. He’s not getting paid for it, but it’s for a good cause. A local organization makes unique items for children with special needs to help them feel…
Because James was diagnosed with infantile spasms, a type of epilepsy in infants, I found this news article interesting: https://www.adelaidenow.com.au/news/south-australia/researchers-discover-source-of-infant-epilepsy/news-story/ef954c883fc08ada20a590fbf4fa9928 Researchers at the University of South Australia found that a genetic mutation on chromosome 16 appears to be the cause of epilepsy in infants. They’ve known that the mutation responsible…
It’s been a relatively quiet couple of weeks, medically speaking, which is why I didn’t post anything last weekend. Last Sunday, however, Stacy noticed a little bit of red discharge in James’ left ear. She called the pediatrician and he thought it sounded like an ear infection. He prescribed an…
As we come to the end of Epilepsy Awareness Month, I have a couple of videos that I wanted to share with you. This first video was put together by a mom in an infantile spasms group on Facebook that Stacy is a member of. The video includes pictures of…
Stacy had been wanting to do something to raise awareness for epilepsy so yesterday she hosted a “Purple Party” where a bunch of our friends and family members came over and got purple hair extensions put in their hair. A special thank you to all that came out to support…
Fever I have to say that Stacy is becoming quite a pro when it comes to James. On Tuesday we switched James from the ketogenic diet—which we were trying as a treatment for his infantile spasms—back to formula. Prior to the diet, James was getting Similac Sensitive. Now we are…
“I am starting to get very pissed off at these stupid seizures!!! They have gotten worse and we have not done a single thing different!!! We are going to take him off the Keto diet next week and introduce a new med. I just want James to stop get frazzled...…