November is Epilepsy Awareness Month

Did you know that epilepsy is the 3rd most common neurological disorder (behind headaches and strokes) and affects around 2.5 million Americans? It's been estimated that 10% of the American population will experience a seizure in their lifetime. Every year there are nearly 181,000 newly diagnosed epilepsy causes in the…

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At Home VEEG

This was quite the experience. James had an at home video EEG (VEEG) over the past couple of days to record his seizure/infantile spasm activity. He is currently on 4 antiseizure meds to control his seizures and spasms which make him sleep most of the day. We’re hoping that we…

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FDA Approves ACTH

This is interesting, and a bit concerning. One of the parents in an infantile spasms support group on Facebook that Stacy is a part of posted a link to a press release about the FDA approving ACTH for infantile spasms. The press release can be found here: https://www.prnewswire.com/news-releases/fda-approves-hp-acthar-gel-for-the-treatment-of-infantile-spasms-105024204.html I think…

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Trying 2nd Dose of Sabril Again

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Neuro Eye Doctor and Next Steps

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Bad Reaction to Sabril?

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Sabril and Infantile Spasm Update

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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