VEEG, School, and Christmas

VEEG James had been doing annual VEEGs (video EEGs) for many years as a way to look at seizure activity in his brain to see if there were any changes to his meds or VNS that should be made. VEEGs are usually done in the hospital, but we skipped 2019…

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Pneumonia Update, School, Family Pictures, and Thanksgiving

This will probably be a pretty short post. With the exception of the first week of the month, November has been pretty boring. That’s not really a bad thing, although this could just be the calm before the storm.     Pneumonia Update As I mentioned in the November 2nd…

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Read more about the article Halloween, Health Update, School, and Our Other Kids
James' locker at school

Halloween, Health Update, School, and Our Other Kids

Halloween I think this was only the second time in James’ life that we took him trick or treating around our neighborhood. It’s usually either too cold for him to be outside for long periods of time, or Halloween falls on a weeknight when he’s zonked from school and he’s…

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Read more about the article Health Update and Some School Stuff
"Self Portrait"

Health Update and Some School Stuff

  This ought to be a short post. The is the second month in a row where not much has happened. It’s been kind of nice. We all needed a break from all of the chaos in July and August…in the hospital with pneumonia for a few days, back into…

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Read more about the article Back to Normal?
James got his first dose of the Covid vaccine

Back to Normal?

It’s been a couple of months since I wrote a regular monthly post, but it feels like it has been a lot longer than that. I think things are back to normal…if there is such a thing. As long as James doesn’t throw us another curveball and remains healthy, I…

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Elementary School Graduate, Ventilator, and Spinal Fusion Anniversary

Elementary School Graduate Well, as of Friday, James is no longer in elementary school. Although he will have a few weeks of summer school, he is officially a 6th grade graduate, and will be starting junior high in the fall. I have no idea where the years have gone. It…

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James Health Update, New Ear Tubes, Therapy Table, School, and a Heavenly Birthday

It finally happened. After more than a year, I have finally gone back to working normal hours. When Covid first became a health concern in February or March of last year, I almost immediately requested (and was approved) to work from home so that I didn’t contract Covid and/or bring…

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