It’s been a relatively quiet couple of weeks, medically speaking, which is why I didn’t post anything last weekend. Last Sunday, however, Stacy noticed a little bit of red discharge in James’ left ear. She called the pediatrician and he thought it sounded like an ear infection. He prescribed an antibiotic as well as some ear drops and wanted to see him the next day. On Monday Stacy took James to the doctor who confirmed that it was an ear infection in his left ear. He also said that it looks like the right ear tube is working its way out. It must be working at a snail’s pace, because we think he said the same thing a couple of months ago.
On Wednesday James went to the neurologist for a routine appointment. The doc just made a dosage change to one of the seizure meds that James is taking. Speaking of seizures, Stacy was looking back at some old pictures of James and came across a video that was taken just a couple of weeks before he was diagnosed with a seizure disorder. When this video was taken, we knew that James had several disabilities. We had come to terms with the fact that he wouldn’t be normal, and we were determined to give him the best life he could possibly have. All of the issues he had up until that point were manageable…for the most part. Then we were thrown another curveball when he started having “the quirks” as we called them at the time. He would later be diagnosed with infantile spasms, which is a form of epilepsy. We’ve been battling for two years now to get these spasms/seizures under control, but so far have been unsuccessful. We would give anything to take these damn things away from him!
