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As you may know, we’re still dealing with James’ infantile spasms (IS). They don’t seem to be getting better. We’ve tried ACTH injections, which was supposed to be the best treatment for infantile spasms, but that didn’t work. There is another drug (vigabatrin) that is supposed to also be effective in treating infantile spasms, but we are really nervous about starting that one because of the possibility of permanent eye damage.
A couple of weeks ago we decided to try Clonazepam to see if that will help get the infantile spasms under control. So far we are seeing little, if any, improvement in the spasms. Stacy put a call into the neurologist with an update and he wanted us to try to increase the dose a little bit. We’ll try that and see what happens.
