In a post I made a couple of weeks ago I had mentioned how February just flew by, James remained healthy all month, and we were wondering if it was just the “calm before the storm.” James has this habit of staying healthy for an unusual amount of time (for him), just long enough for us to put our guards down, and then BAM, he surprises us with one of his respiratory illnesses seemingly out of nowhere. Because of his inability to suck or swallow, and therefore manage his own secretions, James often gets aspiration pneumonia.
Today was that day…or so we thought. This morning he was unable to get his oxygen saturations up to acceptable levels, which for him is above 85. Even with the oxygen concentrator providing him with 2.5 liters of oxygen. This and his high heartrate are the typical warning signs that he is coming down with something.
By noon he was back to normal like nothing happened. We swear he was just testing us. Making sure we remembered how to manage one of his respiratory episodes. Did we pass the test James? Good. Now can you not do that anymore? The stress is not good for mommy and daddy. Thanks dude.
Other than that little stunt that James pulled, the last couple of weeks have been rather chill. Last week Stacy brought one of her dog walking clients home for a couple of hours. She wasn’t sure about James, but gave him lots of kisses on his ear, eye and mouth.
March 7th was “Spread the Word to End the Word Day”, which is a call to action to stop using the “R-word”. You know…retarded. We’ve all used it, me included. I’ve used it more than I’d like to admit, and I still find myself using it from time to time. I need to do better. Here is a list of alternate words you can use:
James received a package in the mail a few days ago from Bounce Children’s Foundation that was full of little things for St. Patrick’s Day.
Bounce really is an amazing organization. In addition to the holiday themed packages they send, they also arrange some pretty cool outings for special needs kids and their families. If you are in the Chicagoland area, have a special needs child, and aren’t already a member, consider joining.
I realize this has turned into one of those hodge podge messy posts without much flow. I just have one last thing to throw out there. It’s more of a reminder really. If you haven’t done so already, please check out Stacy’s Thirty-One online party. It’s Cerebral Palsy Awareness Month and 20% of all sales will be donated to United Cerebral Palsy Center for Disability Services.
https://www.mythirtyone.com/627441/shop/Party/EventDetail/10518945
