The probe for the esophageal pH test was placed at noon today and will be taken out at noon tomorrow. Now I really feel bad for the kid. Instead of two tubes shoved down his nose, he now has three!
They will go over the results by the end of the day Friday and we will hopefully have a family meeting to discuss on Monday and G-tube surgery on Wednesday.
The orthopedic surgeon called Stacy to go over his observations. He said that James has something called hemivertebrae, which is a condition where half of a vertebra in the spine does not form. Hemivertebrae is also known as congenital scoliosis, which is a sideways curvature of the spine. He said that there is nothing to worry about now and to have another x-ray of James’ spine done sometime between 6 and 12 months.
The geneticist stopped by to talk to Stacy about some further testing they would like to run on James. Stacy didn’t write down what the specific tests were, but said that they were DNA tests that may provide good information for future pregnancies. Neither one of us is thinking about having another kid right now, but we suppose it couldn’t hurt to do the tests for future reference.
This is what happens when you get a little bored in the NICU…or maybe we were just a bit slap happy. You play hide-and-go-seek:
