As many of you know, James has been dealing with infantile spasms and seizures for almost two years now. Since James is non-verbal, we have no idea how he feels about them, but Stacy thinks that if he was able to tells us, he would say something like this:
“I am still having so many seizures during the day!!! I just want a day of no seizures, I just want to be able to hang out with mamma, in her arms watching some TV and not have to do a single ab crunch (that is sorta what it looks like). Two years of these, you would think I would have abs of steel!!! I am still on the Keto diet, not too sure if it is working. We see my neuro in a month, and I will talk to him (mommy will actually) about this stupid diet and meds. I just want some relief, is that too much to ask!!”
It’s extremely aggravating watching your little one suffer like this and not be able to anything to stop it. We’ve tried so many drugs, combinations of drugs, and this ketogenic diet that he is currently on. Nothing has worked! Why has nothing worked? Is his brain that messed up? Like James said, we see his neurologist in a month, so we’ll see if he has anything else he wants to try.
