The pH probe for the esophageal pH test was not placed today. They plan on placing it sometime tomorrow after 11:00 am. Once it’s placed, they will keep it in for 24 hours, then look over the results and setup a meeting to discuss those results early next week. The…
An audiologist called Stacy to setup an appointment to test James’ hearing on Monday, October 5th at 2:00 pm. They have been having issues testing his hearing in the NICU, so they are going to try something a bit different. They are going to try to test him while he…
The GI doctor stopped by to talk with Stacy about the pH probe (esophageal pH test). James has to be off the Reglan and Pepcid in order to do the test, which makes sense. James can’t have any medications in his system that will adversely affect the test. Since both…
Today is Stacy’s birthday. Happy 30th Stacy! It’s interesting to note that James, Stacy, and Stacy’s dad are almost exactly 30 years apart in age. James was born on August 29th, Stacy’s 30th is today, and Stacy’s dad will be 60 on October 16th. So, what did we do to…
James’ morning nurse was concerned that his NJ-tube was loose because it was measuring at 53 instead of 48 (nose to tip). The NJ-tube is the nasal tube that goes past his stomach and into the small intestine. They did an x-ray and confirmed that it was in place and…
James’ feeds have been increased to 55 ml and they put him back on Reglan. He had the upper GI today and it didn’t show any reflux. The GI doc is going to talk with the NICU team and decide the best route for long term feedings. Stacy thinks G-tube…
Stacy talked with the geneticist today who confirmed that they sent out James’ bloodwork to Dave Wenger Labs in Philadelphia to test for lysosomal storage diseases. These diseases are inherited metabolic diseases that are characterized by an abnormal build-up of various toxic materials in the body's cells as a result…