House, Diet Update, and Shirts

This past week has been a relatively uneventful, but I felt like I need to post a little something. I guess I should clarify and say that it’s been relatively uneventful as far as James goes…which is a good thing. As a family, however, we had something pretty big happen.…

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Spasm Caught on Video

Last week at James’ neurology appointment, the doc made a couple of med changes, one of which was to take James off of one of the seizure meds this week. Tuesday was his last day of that med, but his spasms are still crazy. They happen so quickly that we…

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Read more about the article Spasms, Elmo, and Sprinklers
James and Stacy Playing in the Sprinkler

Spasms, Elmo, and Sprinklers

James had a longer neurology appointment on Tuesday. Normally the appointments are just checkups to see how things are going and possible med changes. This time the neuro wanted James to have an EEG first so he could see if there are any changes since his last EEG. The good…

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Still Having Spasms

Today Stacy started to see James have some pretty intense spasms. The way she described it is that he would have a full spasm, which was followed by several twitches and some loud cries. She’s not sure if the cries were because he was in pain, or if he’s scared.…

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Read more about the article Special Tomato Chair
Front View of James in the Special Tomato Chair

Special Tomato Chair

When you become a member of the special needs community, sooner or later you learn that any adaptive equipment is expensive. We’ve been pretty fortunate so far that most things that James has to make his life more manageable or that has kept him alive has be provided through insurance,…

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Man Robs Bank to Get Health Care in Jail?

Here’s an article that was posted by ABC News yesterday: N.C. Man Allegedly Robs Bank of $1 to Get Health Care in Jail A man in North Carolina had some medical issues that he was unable to get treatment for because he was unemployed and didn’t have any health insurance.…

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Read more about the article ENT Appointment
James' Ear

ENT Appointment

I think all parents can related to this. Shortly after James was born Stacy and I did a little inspection. We looked him over to see which of his parts he got from each of us. As you can see from the pics below, James definitely got his ears from…

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