I hope I don’t jinx it, but it looks like we changed history…in a good way. On November 29th, 2009, James was three months old and was in the PICU (Pediatric ICU) with pneumonia. On November 29, 2010, James was fifteen months old and was on the pediatric…
This is an update to last week’s New Pulse Ox and Another Illness post. Monday, the 14th, James was still working his way back to normal…slowly, but surely. Stacy had him on somewhere between 1/8 and ¼ liter of oxygen. His sats were a little wonky; he would be at…
James went to see the neurologist on Thursday to check in to see how everything is going. Because James is still having frequent seizures/spasms, and the fact that James has lost so much weight, the neuro thinks we should take James off the ketogenic diet. Another failed treatment to get…
James went to see the neurologist overseeing his keto diet (aka “keto doc”) today for a check in and weight check on Tuesday. He is down three pounds since he started the diet. He started at 26 pounds; he is just a smidge over 23 pounds now. The keto doc…
This past week has been a relatively uneventful, but I felt like I need to post a little something. I guess I should clarify and say that it’s been relatively uneventful as far as James goes…which is a good thing. As a family, however, we had something pretty big happen.…
James had a longer neurology appointment on Tuesday. Normally the appointments are just checkups to see how things are going and possible med changes. This time the neuro wanted James to have an EEG first so he could see if there are any changes since his last EEG. The good…
I think all parents can related to this. Shortly after James was born Stacy and I did a little inspection. We looked him over to see which of his parts he got from each of us. As you can see from the pics below, James definitely got his ears from…