Read more about the article Eyes, Ears, Mouth and High School
Ready to go skiing

Eyes, Ears, Mouth and High School

Happy New Year…a month late. Hope you are all doing well. We’re hanging in there, impatiently waiting for winter to be over. It’s been brutal this year. James doesn’t do well with the cold in the winter…or in the hot, humid summers. I often ask myself why we are still…

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School, VNS Replacement, and Some Random Stuff

School You know, it kind of sucks when you’re so dependent on someone else. James is 100% dependent on others to provide his feedings, change his diaper, give him his medications, etc. That’s why he has a one-on-one nurse at school. But if there isn’t a nurse, he can’t go…

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A Long Six Weeks, Part 2: Adjacent Tissue Transfer

Welcome to Part 2 of the so-called “A Long Six Weeks” series. In Part 1, James was in the hospital for six days with pneumonia. During that hospital stay, Stacy was trying to find a doctor or surgeon to stop by James’ room to look at the wound he had…

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James Health Update, New Ear Tubes, Therapy Table, School, and a Heavenly Birthday

It finally happened. After more than a year, I have finally gone back to working normal hours. When Covid first became a health concern in February or March of last year, I almost immediately requested (and was approved) to work from home so that I didn’t contract Covid and/or bring…

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Read more about the article Spinal Fusion Surgery
X-ray to confirm placement off central line

Spinal Fusion Surgery

Disclaimer: The author of the content below is not a medical professional and does not have any medical training. As such, the contents on this page, including text, graphics, images, and any other material are for informational purposes only. The Content is not intended to be a substitute for professional…

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Four Days Until Spinal Fusion

  Thursday is the day that James finally gets his spinal fusion. We’ve been waiting for this day for almost a year. He was originally supposed to have the surgery last July, but our insurance denied it because the curvature of his spine wasn’t severe enough to meet their criteria.…

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Pneumonia, Spinal Fusion Update, Fundraiser, Wedding, School, Easter, Jackson, and Our New Sign

I feel like I’ve gotten off track a bit. I was doing so good for a while with keeping up with the monthly posts. These past couple of months have been a bit hectic with Spring Break, James being in the hospital for a couple of days, and then Easter.…

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