January 20th has been designated as the International Day of Acceptance, which was started by Annie Hopkins, a local woman and the inspiration and co-founder of 3E Love. Unfortunately, Annie passed away in 2009, but her dream and vision lives on. Being someone with a disability, she dreamed of…
Ever since James came home from the NICU in October of 2009, we have had lots of support from various services. We have home health from the hospital which provides all of James equipment (pulse ox, suction machine, nebulizer for breathing treatments, oxygen tanks, etc.); we have early intervention (EI)…
Knowing that James isn’t going to be little forever, and that it’s going to continually get harder and harder to carry him up the stairs at our condo, we started shopping for houses a couple of months ago. When we first got married, one of Stacy’s mom’s rules was that…
As you are probably aware of by now if you’ve been keeping up with this blog, James has been suffering from infantile spasms (a form of epilepsy) for over a year now. We’ve tried the top two treatments for infantile spasms, ACTH and Vigabatrin, but neither has seemed to help.…
Here’s a fun fact about Stacy. She used to love to sew when she was younger. But then life happened, she went to college, got a job teaching, and just didn’t have the time for sewing anymore. Back in November, Stacy made a blanket out of some of James’ old…
I celebrated my birthday a few days ago and it’s customary for us to get a couple of slices of Portillo’s chocolate cake for our birthdays. Best cake ever! If you live in the Chicago area, you know what I’m talking about. Here’s a pic of James helping mommy eat…
If you read the “A Very Merry Christmas” post, you know that someone donated an iPad to James for Christmas. If you haven’t read the post, I linked to it above. After seeing the intro videos, some video demonstrations, and having James’ vision therapist use an iPad with him, we…