Read more about the article Santa Claus, Proud Shirts and Modeling
Waiting to Meet Santa

Santa Claus, Proud Shirts and Modeling

First Time Meeting Santa Claus Because James wound up in the hospital with pneumonia after Thanksgiving in 2009 and again in 2010, we thought it was best to limit his exposure to the outdoors those two winters. Unfortunately, that meant that he was unable to meet Santa Claus. This year…

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Read more about the article History Did Not Repeat Itself This Year
At Home 2011

History Did Not Repeat Itself This Year

I hope I don’t jinx it, but it looks like we changed history…in a good way. On November 29th, 2009, James was three months old and was in the PICU (Pediatric ICU) with pneumonia.     On November 29, 2010, James was fifteen months old and was on the pediatric…

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Thanksgiving 2011

  What are we thankful for this year? "Today I am thankful for James’ health (getting over that cold quick without a hotel stay)!! Thankful for my husband working so hard to put this new house's roof over our head and food on our table. I am thankful for my…

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Read more about the article Fever, Epilepsy Awareness, a Pirate, and a Greaser
Pirate James

Fever, Epilepsy Awareness, a Pirate, and a Greaser

Fever I have to say that Stacy is becoming quite a pro when it comes to James. On Tuesday we switched James from the ketogenic diet—which we were trying as a treatment for his infantile spasms—back to formula. Prior to the diet, James was getting Similac Sensitive. Now we are…

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Read more about the article Easter 2011
James and Mommy Ready for Easter Dinner

Easter 2011

We normally go to Lake Lawn in Delavan, Wisconsin for Easter weekend. It has been a family tradition since before I was born. This year we decided to do go someplace different. A few years ago, Lake Lawn was sold to a group of investors who had an ambitious plan…

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Read more about the article A Very Merry Christmas
James surrounded by gifts from Normal Moments

A Very Merry Christmas

We are speechless. We have no words. Completely blown away. But before I get to the reasons why, I'd like to start by saying that we are thankful that James was healthy enough to have a normal Christmas. You see, last Christmas James was just getting over an illness so…

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All I Want for Christmas is for James to Learn to Swallow

All I Want for Christmas is for James to Learn to Swallow That's a simple request, isn’t it? If you have been following James’ story, you know that he has been in the hospital on multiple occasions for respiratory distress. We’re pretty sure all of those hospital stays could have…

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